Comments on: Ménières Disease – the common rare disease http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html News you didn't know you needed Thu, 29 Jul 2010 15:49:05 +0000 hourly 1 http://wordpress.org/?v=3.0 By: Marcus http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-2529 Marcus Tue, 01 Dec 2009 23:20:37 +0000 http://blog.23x.net/?p=76#comment-2529 How weird is this - was diagnosed with Meniere's in a random hospital in Cambridge when I collapsed in Ely back in '04. Anyone want to try to do stats on classmates coming down with the same random illness. Come to think of it... let's look into the Educational system we went through and see if that had any bearing on our chances of getting this illness. Oh and for the record - no car crashes either but a blow to the head aged 4 whilst blissfully sat on the swings (swinging, natch) and my best friend at the time insists on trying to get me to catch a housebrick whilst I am ignoring it. Head/brick trauma incident. Other than that, I am (allegedly) normal! How weird is this – was diagnosed with Meniere’s in a random hospital in Cambridge when I collapsed in Ely back in ’04. Anyone want to try to do stats on classmates coming down with the same random illness. Come to think of it… let’s look into the Educational system we went through and see if that had any bearing on our chances of getting this illness. Oh and for the record – no car crashes either but a blow to the head aged 4 whilst blissfully sat on the swings (swinging, natch) and my best friend at the time insists on trying to get me to catch a housebrick whilst I am ignoring it. Head/brick trauma incident. Other than that, I am (allegedly) normal!

]]> By: David Stillwagon http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-2452 David Stillwagon Sat, 28 Nov 2009 03:18:03 +0000 http://blog.23x.net/?p=76#comment-2452 My first meniere's attack was a week after my car accident. The first ENT that I saw didn't think there was any connection, but I truly believe that it was the trigger that started my meniere's. It just seemed like more than a coincidence. I really like your blog by the way My first meniere’s attack was a week after my car accident. The first ENT that I saw didn’t think there was any connection, but I truly believe that it was the trigger that started my meniere’s. It just seemed like more than a coincidence.
I really like your blog by the way

]]> By: Jeff http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-2451 Jeff Fri, 27 Nov 2009 15:45:36 +0000 http://blog.23x.net/?p=76#comment-2451 Regarding car accidents, take a look at http://www.mylifeandmenieresdisease.com - David, the chap who writes it, puts his meniere's down to one. Regarding car accidents, take a look at http://www.mylifeandmenieresdisease.com – David, the chap who writes it, puts his meniere’s down to one.

]]> By: F http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-2215 F Fri, 25 Sep 2009 19:38:21 +0000 http://blog.23x.net/?p=76#comment-2215 Rob, trauma to the head and neck is quite a different paraphysiology. Rob, trauma to the head and neck is quite a different paraphysiology.

]]> By: F http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-2214 F Fri, 25 Sep 2009 19:30:47 +0000 http://blog.23x.net/?p=76#comment-2214 The DX is clinical, the only way to absolutely DX Menieres is post mortem. I suspected I had it due to dizziness, nausea vomiting, hearing loss and Tinnitus. Was put on Betahistine (US:SERC) for months. Eventually I got to see an ENT but it was just a pre-malignant tumour, positional vertigo, noise induced hearing loss and Tinnitus. Ray, Quinine is ototoxic. Certain derivatives of Quinine, used in antimalarials are cochleotoxic. The DX is clinical, the only way to absolutely DX Menieres is post mortem. I suspected I had it due to dizziness, nausea vomiting, hearing loss and Tinnitus. Was put on Betahistine (US:SERC) for months. Eventually I got to see an ENT but it was just a pre-malignant tumour, positional vertigo, noise induced hearing loss and Tinnitus.

Ray, Quinine is ototoxic. Certain derivatives of Quinine, used in antimalarials are cochleotoxic.

]]> By: Jared Earle http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-1992 Jared Earle Wed, 22 Jul 2009 19:02:29 +0000 http://blog.23x.net/?p=76#comment-1992 I've never been in a car crash or suffered a blow to the head. I can't speak for anyone else though. I’ve never been in a car crash or suffered a blow to the head. I can’t speak for anyone else though.

]]> By: RabC http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-1991 RabC Wed, 22 Jul 2009 18:59:58 +0000 http://blog.23x.net/?p=76#comment-1991 Hi just wondered if any of you sufferers have ever had an accident in acar which resulted in whiplash , or a blow to the head at any time? I was suffering what i thought was menieres Disease for many years and having hundreds of bouts of dizziness per day but i am now free of all symptoms thanks to a treatment called NUCCA. If anyone wants to know more let me know. Hi just wondered if any of you sufferers have ever had an accident in acar which resulted in whiplash , or a blow to the head at any time?
I was suffering what i thought was menieres Disease for many years and having hundreds of bouts of dizziness per day but i am now free of all symptoms thanks to a treatment called NUCCA.
If anyone wants to know more let me know.

]]> By: Ray Mayes http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-1877 Ray Mayes Fri, 29 May 2009 09:33:10 +0000 http://blog.23x.net/?p=76#comment-1877 I have had Menieres disease for three years. Prescribed medication is Betahistine 16mg three times a day. This does help, but I still get attacks from time to time. What I have discovered lately, quite by accident, is that drinking Tonic water seems to help even more. This may be a coincidence but it works for me. I know Tonic water contains quinine, can this be of benifit? I should like to hear what other sufferers think. I have had Menieres disease for three years. Prescribed medication is Betahistine 16mg three times a day. This does help, but I still get attacks from time to time. What I have discovered lately, quite by accident, is that drinking Tonic water seems to help even more. This may be a coincidence but it works for me. I know Tonic water contains quinine, can this be of benifit? I should like to hear what other sufferers think.

]]> By: PATRICIA http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-1850 PATRICIA Mon, 25 May 2009 00:16:21 +0000 http://blog.23x.net/?p=76#comment-1850 I have menieres & was treated for "panic attacks" for years ending up in hospital a number of times. Then I had a new doctor & she diagnosed the attacks as menieres & prescribed a betahistine - serc 16 - since then i have had no further attacks. My sister-in-law also has this "rare disease" & is also on the same tablet but a lower dose. She moved house & her new doctor said he didn't think it was meniers & promptly removed her tablets - yes you guessed it the attacks returned! His advice on subsequent visits was to take a pill when she had an attack! The moral of this story is not that the disease is rare but that the doctors are rare in knowing how to diagnose it. Me, i'll just keep taking the pills! I have menieres & was treated for “panic attacks” for years ending up in hospital a number of times. Then I had a new doctor & she diagnosed the attacks as menieres & prescribed a betahistine – serc 16 – since then i have had no further attacks. My sister-in-law also has this “rare disease” & is also on the same tablet but a lower dose. She moved house & her new doctor said he didn’t think it was meniers & promptly removed her tablets – yes you guessed it the attacks returned! His advice on subsequent visits was to take a pill when she had an attack! The moral of this story is not that the disease is rare but that the doctors are rare in knowing how to diagnose it. Me, i’ll just keep taking the pills!

]]> By: Amy http://blog.23x.net/76/menieres-disease-the-common-rare-disease.html#comment-1837 Amy Thu, 21 May 2009 16:28:48 +0000 http://blog.23x.net/?p=76#comment-1837 LOL @ Spadge :) My best friend just told me the same thing. Her father just got diagnosed and the doctor told him it was rare. She said "Strange how this disease is rare, but I now know a few people that have it". I, too, am suffering from it. My doc gave me a diuretic that I take only when symptoms start forming. I don't mind the running to the bathroom as much as the low blood pressure and low salt and low potassium that occurs. It is so tiring. So I guess I'll just keep living life and just wait for it to go away LOL @ Spadge :) My best friend just told me the same thing. Her father just got diagnosed and the doctor told him it was rare. She said “Strange how this disease is rare, but I now know a few people that have it”.
I, too, am suffering from it. My doc gave me a diuretic that I take only when symptoms start forming. I don’t mind the running to the bathroom as much as the low blood pressure and low salt and low potassium that occurs. It is so tiring.
So I guess I’ll just keep living life and just wait for it to go away

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